Putting two fingers up to Fibromyalgia




My son recently asked, "Mum are you unusual within the Fibromyalgia community as it must be a very depressing illness to have, yet you are a jolly, positive person?"

It was such a beautiful question for a twenty-year-old. I love his understanding that this illness is cruel and very depressing for so many people.

I guess I am a happy person but I never want to give a false representation of life is like with Fibromyalgia.

The very same week a lady within our support group was sad and frustrated by positive people who have fibromyalgia. It was such an honest emotion to share with the group and I totally related to every word she said. 

I replied,"I am the most positive person ever and I totally get what you are saying and I am not offended by this post. For me being positive is just part of my management, most days it works but yeah some days I just have a good cry for all the things that are so shitty about this cruel illness. I often look upon fibro as being a bully and there is no way I will be beaten down. It has taken so much from me but I won't allow it to steal my smile and every time I find happiness in my day it is like me putting two fingers up to fibro. 
I suffer from depression also so it is a coping mechanism to keep a lid on the darkness. But I get you, hun, it is rubbish. I spend my day from my bed to my chair and then to bed. So much of my life has changed now but I will never let it rob the small stuff from me."

We are given one life and there is no way I was allowing an illness to steal that from me. I looked upon it as allowing Fibromyalgia to win if I did this. You have to consciously not allow the pain and restrictions to get you down. Waiting for better days is a waste to me. You can not put your life on hold waiting so I decided to create my own rainbows. 


Fibromyalgia for me felt like a bully and this was my way of fighting back.

Being a positive person with an illness is a full-time job, It is not you reach the highest peak, place your happy flag at the top of the summit and you are happy forever. It is a series of daily rituals that you have to work at to stay happy and positive. 







There are many things within my day that are ritualistic now and have become my normal. Such as I always make my first thought of the day a happy one. Even in the short walk from the bed to the bathroom, I look for simple beautiful moments such as my son asleep, the first light through the landing window, my plants on the landing window ledge, Anything that makes me smile. Often we rush through the day unaware of our surroundings, we need to appreciate the small things and be thankful for them. 

I have a little Thankful Journal that I record what made me thankful each day. This little journal that I currently use was only £2 in Wilko. The youngest two sons and I record a thought each every evening before bed. It is great to get children to practice noticing the small things that make them smile. 

If you do not have a Wilko by you then any pretty notebook will do, stick in pretty pictures, make it colourful, use stickers and bits of ribbon, anything you like really, it is your happiness journal. 

I am currently in the process of hint dropping with my sons to get me this amazing journal from the happiness planner for my birthday or Mothers day. I have searched lots of planners and journals and this is by far THE BEST!

They are not cheap so it would have to be a special gift. 

If you are looking to start on the happiness path I recommend you have a look at their web page. There are some great FREE Downloadable charts that are super!



Taken from thehappinessplanner.com


Another thing I have done to maintain happiness is a wall of positivity. All you need is a long piece of string, two nails, and some wooden clothes pegs. Some drawing pins or a cork board.  I would print off quotes I loved, pictures, poems, family photos, children's pictures from school, ticket stubs from past events and have a wall in my house that was for happiness. Back then this was in my kitchen, it was a large kitchen with a huge table. Friends would often comment on my happiness wall and stand and read the quotes. 



Why not decide to put two fingers up to illness and take the first steps to becoming happy?

It is not something that works overnight but in a years time you will be glad you started, I promise.

Love and hugs always

Comments

  1. "We are given one life and there is no way I was allowing an illness to steal that from me. I looked upon it as allowing Fibromyalgia to win if I did this. You have to consciously not allow the pain and restrictions to get you down. Waiting for better days is a waste to me. You can not put your life on hold waiting so I decided to create my own rainbows."
    I LOVED this passage and needed to read it desperately. Thank you thank you thank you! Keep creating rainbows <3
    www.shipwithnosails.com

    ReplyDelete
    Replies
    1. Thank you so much. Your words in your blog keep me going often hunny.
      So sorry for my late reply I have been so bogged down over the winter months I totally forgot about blog comments. Huge love and hugs Ness xxxx

      Delete
  2. Hi, I would like to award you with my "Most Inspiring Blog Award". My blog is Pain Pals Blog and you can see all the details if you head to : https://painpalsblog.wordpress... Claire

    ReplyDelete
    Replies
    1. Thank you so much, this totally made my day when I read it.
      So sorry for my late reply I have been so bogged down over the winter months I totally forgot about blog comments. Huge love and hugs Ness xxxx

      Delete

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