30 things about life with migraine

One of my favourite fibro bloggers shared her 30 things about life with a migraine by THE DAILY MIGRAINE  using this as today's inspiration my post today is part of Migraine and Headache Awareness Month. 

You can learn more about this 30 Things about My Life with Migraines meme at dailyheadache.com. If you blog and live with migraines or headaches of any kind be sure to share your own 30 Things answers on your blog. If you don’t blog and want to share you can do so here or over at dailyheadache.com

1. My diagnosis is: Chronic Migraines and Cluster Headaches

2. My migraine attack frequency is: currently every 10-14 days.  This is super for me thanks to a new medication I have just started for prevention and during an attack.     
3. I was diagnosed in 1988 for Migraines whilst doing my A levels and slightly earlier for Cluster Headaches as they claimed that was due to severe PMT yet gave no cure or hope of a cure besides painkillers.

4. My comorbid conditions include Fibromyalgia, Chronic Fatigue Syndrome (ME/SIED) IBS, Asthma, Endometriosis (pre hysterectomy) panic attacks and depression and diet controlled pre-diabetes type two and probably a few others.    
5. Medication: I never discuss my prescribed medication as what works for one person may not for another and I often feel it creates a prescription hierarchy on social media as some belief that the people with the biggest list of prescribed medication are “more ill” than the people who control illness by other methods, this is not true as we all share the same battle so I simply avoid the subject.

6. My first migraine attack was: When I was in the sixth form studying my “A” levels so 27 years ago!

7. My most disabling migraine symptoms are pain and sensitivity to light.

8. My strangest migraine symptoms are flashing lights, aura, and body weakness.

9. My biggest migraine triggers are stress, teeth grinding (bruxism) certain lighting, strong chemicals, certain foods.

10. I know a migraine attack is coming on when: I feel an aura and heaviness within my head and my body gets pins and needles.
11. The most frustrating part about having a migraine attack is I have no control over it.

12. During a migraine attack, I worry most about how long it will last as some can last for days on end and it is so draining.

13. When I think about a migraine between attacks, I think I will cram as much happiness into a good day.

14. When I tell someone I have a migraine, the response is usually “Oh I get headaches also.”

15. When someone tells me they have a migraine, I think you poor sod I feel your pain!.

16. When I see commercials about migraine treatments, I think “wonder why it has taken me 27 years to find a cure then?”

17. My best coping tools are my house to hide away and sleep when the boys are in school.

18. I find comfort in sleep.

19. I get angry when people say: Not really sure about this one as I don’t take daft comments that people say as a person or allow it to make me angry. 

20. I like it when people say: “Me too” I know that sounds slightly odd but you can feel alone in pain so when you know someone can relate to the exact pain that you experience it almost forms a spiritual bond. 

21. Something kind someone can do for me during a migraine attack is usually just leave me be to deal with it but say a kind word or a gentle hug. 

22. The best thing(s) a doctor has ever said to me about a migraine is “you can’t live like that so let’s find a preventer that works for you and we won’t give up till we get it right” 

23. The hardest thing to accept about having a migraine is it is as much part of me as my shadow.

24. A migraine has taught me that I am not invincible, stress hurts me and I need to listen to my body.

25. The quotation, motto, mantra, or scripture that gets me through an attack is:“better days ahead.”

26. If I could go back to the early days of my diagnosis, I would tell myself the medication the doctor has now put me on as it seems to be working (fingers crossed).

27. The people who support me most are my sons, my sister, and immediate family.

28. The thing I most wish people understood about a migraine is it is not simply a headache and even if it was “just a headache” if you had a continuous debilitating pain for 27 years it is not nice.

29. A migraine and Headache Awareness Month is important to me because living with chronic pain needs to be discussed and the more people share their “me too” stories the more people will feel less isolated and alone with no hope. You can live a happy fulfilled life with a chronic illness.

30. One more thing I’d like to say about life with a migraine is never let it take your smile. 

You can follow Counting my spoons here it is a great blog by an American lady, she has taught me so much about my illness so why not subscribe also, you won't be disappointed. 

Love and gentle hugs


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